In House Arrest, by K. A. Holt, twelve-year-old Timothy Davidson faces the consequences of stealing a wallet to pay for his baby brother’s medicine, which costs $1,445.32 for one month. Whatever insurance Timothy’s family has — there are references to “the state” paying for some medical services — it does not cover all of this child’s serious medical needs. The family is desperate, not that Timothy’s mother wants to admit it. “She never wants to ask for help,” Timothy explains.
Written in verse, the novel consists of Timothy’s entries into a journal the juvenile court requires him to keep during his house arrest. It’s a middle grade book, ideal for children around Timothy’s age, but its content also appeals to adults. The anguish Timothy’s family feels over Levi’s medical challenges is vivid and relatable, probably because the novel is drawn at least in part from the author’s experience.
I read the novel in one sitting with a lump in my throat and tears stinging at the corners of my eyes because this story stirred memories of my twins’ fragile beginnings. My daughters did not have Levi’s diagnosis, but they received expensive medical care and faced heart-wrenching mortality and morbidity odds.
“So many things for such a little baby,” Timothy recalls a nurse saying about the child’s medical supplies. I remember hearing similar words when my tiny former-26 weekers came home after 78 days in the Neonatal Intensive Care Unit with oxygen tanks as big as I am and apnea monitors that had a tendency to go off whenever we were in elevators.
One of my former 26-weekers, who is now 9-years-old, read House Arrest after I did. She teared up too, but for different reasons. She couldn’t understand why Timothy’s family couldn’t afford the medical care Levi needed. There’s no good explanation for why anyone in the United States, one of the wealthiest countries in the world, should struggle to pay for medically necessary care (or forgo it altogether).
Our system of private and public insurance leaves too many families without the coverage they need — a reality that may get far worse thanks to Congress. In many cases, families have to rely on the kindness of acquaintances to survive.
These days, in a time of rising medical costs and inadequate government support, there is nothing more American than asking for help to pay for medical expenses on crowdfunding sites like GoFundMe. Sadly, though, research has shown that the majority of these campaigns do not reach their financial targets. People with greater means, such as having extensive social networks, technological skills, and higher education levels, are more likely to succeed, and these are not necessarily the people with the greatest needs.
Rest assured, though, House Arrest portrays a more optimistic outcome for Timothy’s family. That’s part of what makes it such a satisfying novel.